Foundation for Ichthyosis and Related Skin Types (FIRST) - Ichthyosis Registry
Individuals and families affected by ichthyosis.
24/7
Visit website for information.
Services free of charge.
PA
Description
Offers a registry that serves as a central resource to connect individuals with ichthyosis to clinical trials and researchers studying specific ichthyosis types. Can also provide a free genetic diagnosis for most individuals.
Providing organization
Foundation for Ichthyosis and Related Skin Types (FIRST)
Works to improve lives and seek cures for those affected by ichthyosis and related skin types.