National Organization for Rare Disorders - RareCare Patient Assistance Programs
Eligibility
Individuals living with rare diseases
Hours
Helpline Hours: Monday through Thursday, 8:30am to 7:00pm EST
Friday, 8:30am to 6:00pm EST
(800) 999-6673
Voice
(203) 744-0100
Voice
Application process
Call the helpline or use the link below to contact the support team online. Visit the website to search for general and disease-specific assistance programs.
Fees
Services free of charge
Service area
US
Provides patient assistance programs to help individuals obtain medications, receive financial assistance with insurance premiums and co-pays, get diagnostic testing, and travel assistance for clinical trials or consultations with disease specialists. Assists with caregiver respite, emergency support, rare disease education, and referrals to other patient assistance programs.
Providing organization
National Organization for Rare Disorders
Serves as a nonprofit that represents all individuals and families affected by rare diseases. Works at the intersection of care, research, policy, and community for all rare diseases.
