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National Organization for Rare Disorders - RareCare Patient Assistance Programs

Eligibility

Individuals living with rare diseases

Hours

Helpline Hours: Monday through Thursday, 8:30am to 7:00pm EST Friday, 8:30am to 6:00pm EST

Application process

Call the helpline or use the link below to contact the support team online. Visit the website to search for general and disease-specific assistance programs.

Fees

Services free of charge

Service area

US
Provides patient assistance programs to help individuals obtain medications, receive financial assistance with insurance premiums and co-pays, get diagnostic testing, and travel assistance for clinical trials or consultations with disease specialists. Assists with caregiver respite, emergency support, rare disease education, and referrals to other patient assistance programs.

Providing organization

National Organization for Rare Disorders
Serves as a nonprofit that represents all individuals and families affected by rare diseases. Works at the intersection of care, research, policy, and community for all rare diseases.